She was bullied by people who didn’t understand her condition – they called her rude names & said such as “monster” & ”zombie”. 😢💔 But her husband has the perfect response to haters.

In today’s world of social media, we’re constantly bombarded with images of seemingly perfect people, making society feel even more superficial. For those who don’t fit this ideal mold, it can be a harsh and judgmental place. Brazilian woman Karine de Souza knows this all too well.

Karine, 33, was diagnosed with Xeroderma Pigmentosum (XP) at just three years old, a rare and incurable condition that makes her extremely sensitive to UV rays. Even a few minutes of sun exposure can cause painful sunburns, and her skin lacks the ability to repair itself from sun damage. To manage her condition, she must apply SPF100 sunscreen constantly, even indoors. Over the years, she has undergone 130 surgeries to remove lesions caused by the sun, including the loss of part of her nose and lower lip.
But Karine’s battle isn’t just physical. She’s faced cruel comments and stares from strangers, both in person and online. Despite the challenges, she remains resilient and positive, determined not to let others’ judgments affect her.
Karine found love in an unexpected way—through social media. Her now-husband, Edmilson, was drawn to her strength and story. He embraced Karine’s three children from a previous relationship and has stood by her side through it all. Their relationship, however, has been met with online criticism, with some accusing Edmilson of being with Karine for superficial reasons, labeling her a “sugar mommy.”
Regardless of the negativity, the couple’s love continues to inspire many. A photographer who captured their engagement photos shared heartfelt words online, praising their connection and authenticity. His post went viral, with thousands congratulating Karine and Edmilson for defying societal expectations and demonstrating the power of true love.
Karine remains focused on spreading positivity, encouraging others to “be happy and smile because life happens only once.” In 2023, Karine and Edmilson welcomed their daughter, Zaia, into the world, a blessing they had eagerly awaited since 2020.
Karine’s story is a powerful reminder that love, strength, and positivity can shine even in the face of adversity. Despite enduring constant challenges and judgment, she continues to embrace life with grace and joy.